Monday, April 13, 2009

Happy Autism Awareness Month: part deux

Holy hell. Miles got the memo about it being autism awareness month and he is doing his part to raise awareness.
It has been a flappy, squirmy, whiny, OCD, filled month. And those are just my symptoms.
We need to make some changes and get him back on track. We do a lot of supplementing with him and lately have let that slide. It is starting to take a toll on his behavior. I do like to take him off all of his supplements occasionally and slowly reintroduce each thing. It helps to determine what is continuing to benefit him and what he could maybe do without. It is time to begin the reintroductions.
We also changed our funding from Family Directed Resources to a level one Waiver and in doing so had to change out all of our therapists. We have yet to find replacement therapists.
We were on a wait-list for almost three years for the waiver, which is not bad, considering neighboring counties have wait-lists that run for over 10 years. Unbelievable.
Now that we have the waiver, we are on wait-lists for people who except the waiver. I am still unsure if the benefits of the waiver out weigh what we were receiving through the FDR. I am waiting it out. Don't want to make any quick decisions and end up back on the bottom of that wait-list.
We have a new therapist/intervention specialist coming over tonight. She will work with Miles throughout the summer.
I am crossing my fingers that all goes well. I think it will. We know her fairly well and she is a trooper. We need a trooper.
I have seen Miles drop speech language pathologists like a hot potato. He is a rascal and can put even the best through their paces.
I guess that is one of the things that I love so much about him. He keeps us on our toes.

3 comments:

  1. I feel dumb 'cause I can't think of anything helpful to say, except that I'm thinking of you this evening as the train goes by, and the rain falls, and my baby sleeps in my arms, I'm thinking of you and your boy.

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  2. Thank you for thinking of us.

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  3. Oh dear. Oh dear.

    I am sending well wishes and hoping he gets a memo to cancel all further flappy feistiness.

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